The Spina Bifida Hydrocephalus Association was established as a parent support group in 1969. Almost fifty years later, SBH Queensland has grown to support 700 children and adults with spina bifida and hydrocephalus.
Spina bifida is the most frequently occurring, permanently disabling, birth defect. The failure of the vertebrae and spinal cord to correctly develop within the first month of pregnancy results in complex impairments for the individual. This can include lack of sensation and muscle function in the lower body and legs, problems with bladder and bowel function, joint abnormalities and deformities of the back. With no cure, lifelong support is required.
In Queensland, medical research suggests that 5% of the population have some form of Spina Bifida. Spina Bifida affects approximately 1 in 1000 babies born in Australia.
SBH Queensland provide support, information, therapy and program to children and adults, as well as their families and carers.
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